excuse my English, im a 29 old male from Germany.
Last november my Story beguns. The right side of my Face started to become numb. I also had very strong headaches and get to the Doctor. The Doctor just gave me Novalgin Tablets and said i should relax until the weekend. I Started to become double Vision and some Problems to walk. After the weekend it wont be better, so Me and my Girlfriend decided to visit a Hospital. After that i was not able to walk without a wheelchair and my double vision still exist.
They started a MRI and have seen, that i have many lesions in my Brainsteem and my Pons. They brought me to another Hospital. They began to give me some Antibotica and Cortison to stop my Symptons. I Had many investigations. Also they took nervous water. They said it isnt MS but they dont know what it is. They started with the Diagnosis ADEM. After some days the decided to make a Brain Biospy because they think it could be a Tumor.
After a few Days came the result. No Tumor. I Was really happy.
I Begun the rehabilitation after 2 months in the Hospital. Ive been there for 4 Weeks.
Now im at Home since Feburary 2018 and still have some Symptoms:
They numbness in my Face isnt gone away....Its still there arround the Mouth. Thats the reason why i have still Speech issues. Not much but a bit.
I still have Problems with the balance and with my motor skills.
Im at the Moment at 15mg Methotrexat per week and now at 10mg Prednisolon. I started with 70mg at the Beginning of the Year.
I have big mood swings and i am exhausted all the Time.
Will these Symptoms disappear any Time? Nobody can Tell me something because nobody has experience with this Rare Disease. I Dont know what i should do.
Excuse my Bad English and i hope all of you can understand what i have written.