CNS Lymphoma

[Sanford Rhodes]

Just admitted to MD Anderson in Houston to begin Chemotherapy treatment for CNS Lymphoma.  Diagnosed 3 yrs ago with CLIPPERS.

[BillCrum]

I'm very sorry to hear this Sanford.

[Shelly]

Well, that's scary.  Do you know Sanford's history?

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On Mar 12, 2014, at 4:53 AM, "BillCrum [via CLIPPERS]" <[hidden email]> wrote:

I'm very sorry to hear this Sanford.

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[BillCrum]

I can tell you my history - it would  be inappropriate to discuss anybody elses history here.

When I got a CLIPPERS diagnosis I was told there was a slight possibility that I could in fact have a diffuse CNS lymphoma even though there was nothing found on any of the various tests I had. I declined a brain biopsy which might have picked it up (but also it might not have done). I was told this kind of Lymphoma was very rare and hard to diagnose - but then CLIPPERS is also very rare and hard to diagnose.

 I "held  my breath" for several months as I was told Lymphoma would appear to initially improve with steroids but would then come back.  I wrote a blog entry at the time about Lymphoma being "the elephant in the room". This is one reason why stronger diagnostic criteria and definitive tests are needed for CLIPPERS.