Thank
you for your reply, I am at work but would like to reply with more questions
this evening if don't mind.
Sent
from my BlackBerry 10 smartphone on the Bell network.
Hi Owen,
Since I have significant nerve pain, I thought I would respond to your
email. I’m so sorry to hear about your daughter.
I was diagnosed at the Mayo in June of 2013. The first couple of months,
I had some sensitivity but then developed quite a bit of nerve pain as time
went on (mostly back, lower legs and feet). The Mayo neurologist told me
that the nerve pain was not generally a symptom of CLIPPERS but must be from
spinal cord inflammation when I got sick.
Currently, I’m taking 3 prescriptions for the pain: amitripyline,
gabapentin and Cymbalta. My doc just added the Cymbalta about a
month ago. I’m still not pain free, but feeling much better than a month
ago. My activities are still limited and seem to do best if I put my
feet up throughout the day.
In addition to the amitripyline (which is an old fashion antidepressant
named Elavil), I take Zoloft. Although the Zoloft was prescribed for my
Pseudobulbar affect (PBA), I can’t help but think
it’s helped me from getting depressed.
I do hope your daughter starts to feel better,
Terry
On May 26, 2014, at 1:02 AM, Owen Stables [via CLIPPERS] <<a
href="<a href="x-msg://37/user/SendEmail.jtp?type=node&amp;node=84&amp;i=0">x-msg://37/user/SendEmail.jtp?type=node&node=84&i=0"
target="_top" rel="nofollow" link="external">[hidden email]>
wrote:
Bill,
my daughter has been diagnosed with CLIPPERS ,
apparently she was 1 of 2 in Canada at the time she was diagnosed in early
2013. She suffers with a lot of different symptoms but most debilitating is
her chronic nerve pain which is present in her back and lower legs.
Essentially she is house bound which has contributed to a deep depression
and other complications.
Any insight would be appreciated .
To
start a new topic under CLIPPERS, email <a
href="<a href="x-msg://37/user/SendEmail.jtp?type=node&amp;node=84&amp;i=1">x-msg://37/user/SendEmail.jtp?type=node&node=84&i=1"
target="_top" rel="nofollow" link="external">[hidden email]
To
unsubscribe from # of Cases, Nerve Pain, Mayo Study, <A
href="wlmailhtml:{2F065C54-6C86-429C-B42E-824F279BDBE3}<a href="mid://00000019/">mid://00000019/"
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NAML
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