Hi Alicia. I was originally diagnosed July 2011. My current complains are similar to yours. Poor balance, driving cautiously, speech difficulties among others. It is recommended and I was on a 'pulse iv steroid' treatment at first. In fact my initial neurologist, unconventionally, kept me on a every 4 week pulse steroid treatment for almost a year. 750 mg for 2 days the 500 mg for 2 days every 4 weeks. This caused sleep issues solved with sleeping aids. I would be very tired after each session for about a week the feel ok for 2 weeks then crummy for a week. This was expensive and time consuming to go to the hospital for the IVs. Since then I have started in March of 2013 a oral steroid regime that tapers from 60mg per day to my current 15mg per day. My current neurologist in consultation with a neurologist at Johns Hopkins are worried about a symptom that has developed involving my left arm. They want to keep me at 15mg per day for an additional 6 months before resuming taper. :( I can consciously control my arm but when walking and unoccupied, it rises up and sort of flails about. If I walk holding my sweety's hand or keep the hand in my pocket, no problem.
This drug regime has play havoc on my sleep patterns which settled down a few months ago when I went below 25 mg per day. I still have almost all the same symptoms as I had originally only diminished in severity and without the double vision that really scared me at first. The lesions in my cerebellum are diminished and I've adjusted to my new normal. I've not being back to work since March 2013 and don't suspect I will be working anymore.
I don't know Dr. McKean but at least he has hear of CLIPPERS before. I'd trust him. I have heard of one of his colleagues Dr. Pittock, the main researcher on the original paper describing CLIPPERS. http://brain.oxfordjournals.org/content/133/9/2626.full
Let me know if I can answer any questions.