Thanks for the replys. I'm nearing my one year anniversary (March 2016) and have started back to work PT in October. At first I was doing great at 10-15 hours per week but have had to lower it to only 6-10 hours per week.
My commute is also 45 minutes to 90 minutes each way.
I've had two IV treatments of 1,000 mg x 5 days (April and June) and have been on 50mg of Prednisone every other day for over 6 months along with 15 mg weekly of methotrexate. As of my last MRI in December at the Mayo Clinic I am lesion free and will start tapering the Prednisone down starting next week (5 mg every two weeks).
They now tell me I have CLIPPERS and FIBRO. I either need to take a nap on my way to work or on my way home. If I put out more than 5 hours of activity in a day I end up spending the next day in bed. Daily headaches, neck, back, ankle, etc go out on whim. I was in a walking boot for 6 weeks after the doctors told me to "get in shape" and two days at the gym wrecked me. Foot doctor told me that the amounts of Prednisone had weakened my ligaments and to be careful not to overstretch and rupture anything.
Part of me feels I need to suck it up and get back to work but the other part tells me I went back to soon and I'm in a vicious circle.
Still as lost and confused as when this journey started.
P.S. My doctor at the Mayo Clinic told me they are having little success with the 1 week IV of 1,000 mg x 5 followed by a 2 week taper down (60 mg to 0)